About Amanda

I’m a disgruntled LIRR commuter by morning, real estate journalist by day, insomniac by night, and cancer butt-kicker for life.

Where To Find Me

Archives

By Category

Cancer

It’s Not the End of the World

A Writer’s Book of Days (01/12) – Write About Acceptable Losses

If anyone knows about acceptable losses, it’s cancer patients. We accept sacrifices we normally might not embrace in order to survive. We lose our hair. We lose our fertility. We lose our energy. We lose our appetite. We lose our inhibitions. We lose our fear of speaking up. We lose some dreams. We sometimes lose people in our lives frightened by our diagnosis. We trudge on.

It’s not just hearing, “You’re in remission” that makes us survivors. Sure, we beat some abnormal cells in our bodies. But we’ve survived more physically, mentally, and emotionally than you can imagine. We’re stronger people than you might think.

But more important than the losses is what we’ve gained. A new appreciation for life and your body. A new understanding of beauty. The realization that life is short and we need to get things done now. That new dreams can be made. That you’ll find people who will build you up, hold you close, and not let go.

It’s a new lease on life. Accept it, embrace it, and all good things will be yours.

Helping Beyond the Grave

A Writer’s Book of Days (01/04) – “A Year After Your Death…”

My remains are finally delivered back to my family after a prestigious university uses what it can of my body for research purposes.

As a former cancer patient and survivor, I was a goldmine of information for scientists looking for a environmental link between pesticides used on Long Island in the 1980s and 1990s and instances of blood cancers like Non-Hodgkins lymphoma.

As a child, I would be playing outside and mosquito sprayers would drive down the street, helping to prevent another summer outbreak. (In the 1980s, there were no warnings to stay inside.) Some people suggested it might have been residue from the dust after the Twin Towers collapsed on 9/11. The particles had been partially measure in the Bronx, where I was a freshman at college. A few other students were rumored to have cancer, but I never met them.

I became paranoid in 2005, the year my cancer was discovered, I underwent treatment, and went into remission. I stopped dying my hair. Using perfumes. Eating fast food. The constant restrictions on myself was difficult, and I realized I may never know what caused my cancer.

But that wouldn’t stop me from trying to help others. In my early ’30s, when I created my first will, I went through a long process of donating my body to science if I died. My family and friends could just have a small memorial service if they wanted, but I couldn’t justify the hoopla and cost of a traditional funeral when there were still people unexpectedly getting cancer and not knowing why.

A year after my death, there will plenty of evidence that there are environmental factors connected to blood cancer. Reform will be made on the governmental and business side. Blood cancer diagnoses and death will drop greatly. Although small, I’ve done my part.

The 31st Day of Christmas – For Auld Lang Syne

I can’t believe 2011 is nearly over. It seems like only yesterday we were sitting in my best friends’ living room watching Dick Clark’s New Year’s Rockin’ Eve and waiting to see if Y2K would make the world blow up. Even worse, I remember when Prince’s (the artist formerly known as the Artist Formerly Known as Prince?) “1999″ was so far into the future.

Overall, 2011 was a decent year.

  • Although January saw our car Zephyr’s first accident, it was repaired to even better condition that when Lexcie and I first purchased it. We traveled to many places in that car, including New England and down the East Coast to Virginia to see my friends Chris and Nicole get married. We then traveled to West Virginia, a state I’ve never been to before. I wish I knew how many miles we put on the car this year. Over 3,000, at least.
  • Our travels also took us to Great Britain, Scotland, and Wales for 10 days in October, the first time I’ve ever been to Europe. It was a fantastic trip.
  • I was promoted to an editorial position at my job.
  • Healthwise, I reached my sixth year of being cancer free – each day is a celebration! But additional celebrating at the I’m Too Young for This! Cancer Foundation‘s (i[2]y) OMG Summit in NYC in April sent me in for a battery of tests after I discovered I had a strange reaction to drinking alcohol (so my memories of the booze cruise weren’t exactly as fun as everyone else’s). After eight months or so, arrows are pointing to a potential gallbladder issue, but I don’t find out until January 2. My body really needs to give me a break!
  • I met a whole bunch of new friends this  year, particularly through i[2]y, my lymphoma support group on Facebook, Long Island Tweetup, and 140ConfLI.
  • I accomplished plenty of items from my 101 in 1,001 list.
I’m sure there’s plenty more, but my brain is fizzled. No partying for me tonight – I like to stay home, reflect, and just chill out. (And cringe at half of the acts on Dick Clark’s New Year’s Rockin’ Eve, of course). Mom made our traditional minniulata (I probably spelled it wrong – sausage pinwheels), but we skipped making Grandma’s pizza this year since there are only four of us and still too many leftovers from Christmas week. A nice, quiet way to end the year. See you next year!

Help Me Squash Lymphoma!

It’s been a while since I’ve blogged – life has been that crazy. So crazy that I just started fundraising for my annual Light the Night Walk, which benefits the Leukemia & Lymphoma Society. As many of you know, I am a six-year survivor of Non-Hodgkins lymphoma, so this cause is near and dear to my heart. Last year, I raised over $7,700, my best fundraising year ever.

This year, I’ve created a website, Squash Lymphoma, to make donating and promotion a bit easier. It talks about my history, Team Squash Lymphoma, the Leukemia & Lymphoma Society, and my fundraising efforts for the year. I will be walking at Bethpage Ballpark in Central Islip, Long Island on October 29.

To kickstart fundraising, I’m holding my first contest for the month of September. Every $10 donated to my Light the Night fundraising is an entry to win an iPod Touch 8GB. A winner will be chosen at random on October 1.

Other things to do: send out my nifty thank-you notes to last year’s donations (fashionably late, as usual with everything in my life), check out if there’s another Islip street fair this August, and pound the pavement for business sponsors.

Would you please consider donating?

$380 Million

I, like 99% of other Americans who played Mega Millions last night, did not win the $380M jackpot. Or even part of it.

But what the heck would I do with that much money? I can’t even decide what to do with $38 in my pocket sometimes.

Lisa Brewster

So, I thought about what I’d do (after making sure people around were taken care of properly):

  1. Donate significant portions to my three favorite cancer charities: Leukemia & Lymphoma Society, Journey to the Cure, and I’m Too Young For This!
  2. Donate a significant portion to Stony Brook University Cancer Center as a thank you for treating me
  3. Establish scholarship funds for Fordham University and St. Mary School, so students who can’t afford to go to either school could have a chance like I did
  4. Upgrade The Ram‘s office and technology, and upgrade the technology in Fordham’s Communication & Media Studies department as needed
  5. Likely a pipe dream, but convince the Sisters of St. Joseph to reopen The Academy of St. Joseph and upgrade the school so it can properly compete with other private schools on Long Island
  6. Buy an abandoned movie theater – preferably Islip – upgrade it, and name it “A Theater Near You” (which I thought was the name of every theater when I was three years old)
  7. Buy a house, preferably with a pool and near a library
  8. Make sure every food pantry on Long Island is well stocked
  9. Build a shelter or transitional housing
  10. Buy some commercial real estate
  11. Open up my own bookstore
  12. Travel the world

I’m sure I’ll think of other things. What would you do with that much money?