Well, perhaps not the Rolling Stone, but Newsday‘s good enough for me. I was interviewed for the cover story “Their New Lifeline,” which talks about Long Islanders with illnesses and how they’ve used the Internet to share their experiences. The story came out great, and there’s even a full-page photo of me on page A4. If you’re a Newsday subscriber, you can read the story here (with a sidebar on social media). I put a request in for a reprint, so hopefully I’ll have something to share with those who aren’t subscribed.

I was also taped along with a few others for a short video clip:

Exciting!

I’ve managed to get avoid yet another Summer Friday on the Long Island Railroad. It’s the period of time starting the Friday before Memorial Day and ending after Labor Day in which Fire Islanders, Hamptonites, and Montaukians take over the normal, usually quiet, commute home. Ask an everyday commuter on the Montauk Line about Summer Fridays and I guarantee they’ll make a face or groan. Certain beachgoers have earned a well-used nickname – citiots, short for idiots from NYC.

You can tell easily tell the beachgoer from the regular commuter. Beachgoers are Teva, Havaianas, polo shirts, and sundress-clad; smell heavily of suntan lotion or preppy cologne; carry Vera Bradley duffel bags and totes; have cell phones glued to their ears; and sometimes bring along a small dog, usually without a leash or crate. Your regular commuter is dressed for work, whether business suit or hard hat; has a monthly pass hanging around his neck; carries a newspaper and cup of coffee or platform beer; and attempts to sleep the entire way home.

There are unspoken rules that the regular commuter follows. If there aren’t enough seats, allow someone to sit down next to you. If someone was on the platform before you, allow them to enter the train first. Speak softly on your cell phone. Don’t bug to the commuter next to you if he’s sleeping. Don’t eat smelly food or wear heavy perfume. For the most part, this ends in a peaceful ride home (at least when there aren’t service delays).

But not on Summer Fridays. Read the rest of this entry »

In 2005, I was diagnosed with Non-Hodgkin’s lymphoma at the age of 22 (see: Living With Lymphoma). I had just graduated college, and received my first job offer and cancer diagnosis on the same day. Even though I couldn’t take the job, I was determined not to let it ruin my summer. I slyly asked my oncologist if I could attend a Journey concert (not mentioning that it would be two concerts, two days, two cities, and that I would be working on the band’s street team). He said yes, likely assuming that I’d be sitting down and nodding to the music. Yeah, right.

The first show, in Holmdel, NJ went off without a hitch (except for my funky dance moves, which really was spazzing from my post-Neulasta injection bone pain). Two nights later at Jones Beach, Long Island, I was determined to have even more fun. I danced wildly to “Don’t Stop Believin,’” ran to the stage to catch a flying drum stick, and even went backstage to meet the band. In the midst of all the excitement, the temporary port that was put in my arm for chemotherapy fell out. Oops.

Me and Journey lead singer Steve Augeri, the night my port fell out

The next day, I marched into the oncologist’s office with the snaking port in a gallon-sized Ziploc bag. The RN looked at me incredulously, and said, “Don’t you know that you are sick?”

I replied, “I’m not sick, I just have cancer.”

I wasn’t sick. Perhaps minorly inconvenienced. Cancer wasn’t, isn’t, and will never rule my life, and yesterday, I had the pleasure of meeting hundreds of young adult cancer survivors with the same kick-ass attitude at I’m Too Young For This! Cancer Foundation‘s third annual OMG! Cancer Summit for Young Adults at Pace University in New York City. Read the rest of this entry »

And now a public service announcement from Mr. T:

The song is from a video called Be Somebody… or Be Somebody’s Fool from 1984. The video not only includes Mr. T, but a young Martika (of “Toy Soldiers” fame) and Stacey Ferguson, also known as Fergie of the Black Eyed Peas. Both were in the ’80s show Kids Incorporated.

My biggest pre-trip fear was being separated from Lexcie in Taiwan – understandable, since I would be in a foreign country with no grasp of its language. Eleven days went by without incident – that is, until Sunday, when my fear came true. Lexcie and I ran for a subway train; he made it onto the train, the doors shut behind him, and I was left on the platform, watching the train leave the station. Read the rest of this entry »